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Public Meetings to be Held Regarding Purchase of Services Differences in March

Reuniones públicas en marzo sobre diferencias en compra de servicios

Lanterman Regional Center will be hosting two live video conference public meetings on: / El Centro Regional De Lanterman organizará dos reuniones públicas de videoconferencia en vivo sobre:

During the meetings we will be reviewing data on the differences in purchased services for Lanterman clients related to age, race and primary language.

These meetings are held to comply with (Welfare & Institutions Code, 4519.5) that calls for the Department of Developmental Services (DDS) and regional centers to annually compile data relating to purchase of service authorization, utilization and expenditures, and report with respect to several indicators including age, race, language and disability. Each year, this data will be compiled and posted by the regional center by December 31 for the prior fiscal year with public meetings to be held by the following March 31.  

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Durante las reuniones vamos a repasar los datos sobre las diferencias en los servicios comprados para clientes de Lanterman relacionados con la edad, raza y idioma primario

Estas reuniones se llevan a cabo para cumplir con (Código De Bienestar & Instituciones, 4519.5) que pide el Departamento de Servicios del Desarrollo (DDS) y centros regionales para recopilar anualmente datos relacionados con la compra de servicios autorizados, utilización y gastos, e informar respecto a varios indicadores como la edad, raza, idioma y discapacidad. Cada año, esta información será compilada y publicada por el centro regional antes del 31 de diciembre para el año fiscal anterior con reuniones públicas conducidas antes del siguiente 31 de marzo.

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Bases y Fundamentos de la Salud Mental - La Recuperación es un Proceso y Hay Esperanza

El Centro Regional Lanterman, en colaboración con NAMI, les invita a participar en la serie de seis semanas de Salud Mental en 5, 15, 19 y 26 de abril de 2021 y 3 y 13 de mayo de 2021, 5:30 p.m. a 8 p.m., a través del Zoom.

  • Clase 1: Introducción: No es su culpa; las enfermedades mental son trastornos del cerebro
  • Clase 2: Biología de los trastornos mentales; cómo obtener un diagnóstico acertado
  • Clase 3: Tratamiento, descripción general de opciones basadas en evidencia
  • Clase 4: La carga objetiva y subjetiva de la familia
  • Clase 5: Descripción general de los organismos de salud, educación y justicia de menores con los que está relacionado el bienestar de su hijo
  • Clase 6: Defensa y promoción, repaso y distribución de certificados y evaluaciones

Espacio es limitado a 20 personas, se requiere registración, haga clic: https://us02web.zoom.us/meeting/register/tZ0scOCtpjovHdVsNcomEFX_5LVlZxKejneN

Si tiene preguntas, contacte a Joe Perales al 213.252.4986 o jperales@lanterman.org.

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The Importance of Dental Hygiene for Children Ages 0-5 Years Old

Lanterman Regional Center presents a training on The Importance of Dental Hygiene for Children ages 0-5 Years Old on Wednesday, March 31, 2021 from 3:30 to 5 p.m. via Zoom. Learn about:

  • What constitutes good oral health?
  • What are basic dental care principles?
  • How to identify dental problems in your child.
  • How to teach your child to maintain daily oral hygiene.
  • Do you face any challenges with daily oral care?
  • What dental products are adequate?
  • What is the role of nutrition to oral health?

Space is limited, registration required: https://us02web.zoom.us/meeting/register/tZAqd-yprjgqGtYZ_C0xPMaEw7Fw8qdY2iQv

For questions and more info, contact Paola Coronado at 213.252.8348 or pcoronado@lanterman.org.

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La Importancia de la Higiene Dental Para Niños de 0-5 Años de Edad

El Centro Regional Lanterman presenta en un taller de La Importancia de la Higiene Dental Para Niños de 0-5 Años de Edad en miércoles, 24 de marzo de 2021, 3:30 p.m. a 5 p.m., a través del Zoom. Aprender sobre:

  • ¿Qué constituye una buena salud bucal?
  • ¿Cuáles son los principios básicos del cuidado dental?
  • Cómo enseñarle a su hijos/a a mantener la higiene bucal diaria.
  • ¿Se enfrenta a algún desafío con el cuidado bucal diario?
  • ¿Qué productos dentales son adecuadas?
  • ¿Cuál al es el papel de la nutrición en la salud bucal?

Espacio es limitado, se requiere registración, haga clic: https://us02web.zoom.us/meeting/register/tZUpcumgrzkvGtPujTk71W7vjaar5Ng-BDRd

Si tiene preguntas, contacte a Paola Coronado al 213.252.8348 o pcoronado@lanterman.org.

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ARCA Budget Proposals Support Service Coordination Funds and Other Community Needs

California's 21 regional centers, represented by ARCA, are supporting a number of Budget proposals to help our community.

For one of them, ARCA is partnering with Service Employees International Union (SEIU). Together, they're pushing for new money to hire enough service coordinators to meet both your needs and the promises of the Lanterman Act.

Having too few service coordinators harms service delivery and people served, especially diverse communities. The pandemic drove that point home, with new crises overstretching staff resources. Budgeted costs for service coordinators, unchanged for two decades, have dropped from 285% to 117% of minimum wage. This has led to a shortfall of 850 service coordinators as of March 2020.

Fortunately, Assemblymember Jim Frazier, from the East Bay, has once again risen to the challenge of fighting for our community. He will be formally requesting California provide up to $55 million to fix this. Asm. Frazier has a long history of championing the needs of people with developmental disabilities. So it's no surprise he'd see how important it is to provide excellent service coordination!

ARCA, SEIU, and Assemblymember Jim Frazier are working hard to fix this. ARCA's Budget advocacy goes beyond just service coordination. ARCA's full Budget position (https://arcanet.org/pdfs/202122budgetletter.pdf) covers a wide range of needs, including:

  • Close the digital divide to equitably serve all families
  • Improve service access for diverse communities, including through the Community Navigators program
  • End sunsets on provider rate increases and the re-start of furloughs
  • Support professional wages for direct support professionals by improving the minimum wage adjustment process
  • Increased funds for IHSS, special education, and other programs
  • Better support multi-agency foster youth
  • Enhance regional centers' ability to coordinate emergency response
  • Expand crisis prevention and intervention services
  • Improve forensic support to meet complex needs

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Next Day Access Services Trips for COVID-19 Vaccination Appointments at Approved Drive-Thru Sites

Beginning February 22, 2021, if you have an appointment for a COVID-19 vaccination, Access riders can book next-day trips to their COVID-19 vaccination appointments at approved drive-thru vaccination sites.

Call 626.532.1616, select your preferred language, and then select option 2 to make a reservation. Reservations can be made daily between the hours of 8 a.m. to 5 p.m.

Make sure you have an appointment to be vaccinated before booking a drive-thru trip. Visit VaccinateLACounty.com for more information about when and where you can be vaccinated. Access riders without computer access can also call 833.540.0473 to make a vaccination appointment. Drive-thru vaccination trips should only be booked to an approved location and are limited to pick-up locations within 20 miles of the vaccination site. Click here to see a list of approved drive-thru locations. Regular fare applies for vaccination trips.

If you book an Access trip to a drive-thru vaccination, you will not need to get out of the vehicle to get your vaccination. The same vehicle and driver will be with you for the entire trip, and enough time will be built into the schedule for the post-vaccination observation period. After the observation period, the same driver will complete the return trip.

For more information on Access’ COVID response, click here.

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Getting the Vaccine When Supplies Remain a Limiting Factor

It should be noted that availability of vaccines remains a global challenge, so while this step does provide our community with a better position for access, supplies remain the major limiting factor. Following are some of the steps and actions that have been taken to facilitate vaccination, but vaccine demand continues to outpace vaccine supply.

Our best advice is to check back on the websites or call centers mentioned below several times a day, because new slots are made available if there are cancellations or if more vaccine is scheduled to arrive.

Following is new information compiled from the last several days, but there is still a lot that we don't know.

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Individuals with Developmental Disabilities, Severe Health Conditions Receive Vaccine Priority

Thanks to all the self-advocates, family advocates and community members who urged making people with developmental and other disabilities a vaccine priority, your voices were heard.

Last week, the California Department of Public Health announced that beginning March 15, healthcare providers may use their clinical judgement to vaccinate individuals age 16-64 who are deemed to be at the very highest risk for morbidity and mortality from COVID-19 as a direct result of one or more of the following severe health conditions:

  • Cancer, current with debilitated or immunocompromised state
  • Chronic kidney disease, stage 4 or above
  • Chronic pulmonary disease, oxygen dependent
  • Down syndrome
  • lmmunocompromised state (weakened immune system) from solid organ transplant
  • Pregnancy
  • Sickle cell disease
  • Heart conditions, such as heart failure, coronary artery disease, or cardiomyopathies (excludes hypertension)
  • Severe obesity (Body Mass Index 2 is greater or equal to 40 kg/m2)
  • Type 2 diabetes mellitus with hemoglobin A1c level greater than 7.5%

OR

If as a result of a developmental or other severe high-risk disability, one or more of the following applies:

  • The individual is likely to develop severe life-threatening illness or death from COVID-19 infection
  • Acquiring COVID-19 will limit the individual's ability to receive ongoing care or services vital to their well-being and survival
  • Providing adequate and timely COVID care will be particularly challenging as a result of the individual's disability.

At a press conference on February 8, Governor Newsom acknowledged that Californians with developmental disabilities have not received enough vaccines.

He said, “We’ve got to take care of the most vulnerable. And people in the developmentally disabled community, with all the unique challenges and opportunities that present them in their lives, these vaccines need to be prioritized. And I’m committing to doing that.”

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PCP y IPP: De Planificación a Acción

El Centro Regional Lanterman, en colaboración con el Consejo Estatal de Discapacidades del Desarrollo, les invita a participar en un taller de Planificación del Programa Individual (IPP) y en la Planificación Centrada en la Persona (PCP) en jueves, 4 de marzo de 2021, 6 p.m. a 8 p.m., a través del Zoom. Aprender sobre:

  • ¿Qué es un Plan Centrado en la Persona?
  • ¿Cómo puede ayudar la Planificación Centrada en la Persona a desarrollar un IPP?
  • ¿Quién participa en la planificación del IPP/PCP?
  • Aprenda a desarrollar estrategias y objetivos para un plan efectivo.

Espacio es limitado, se requiere registración, haga clic: https://us02web.zoom.us/meeting/register/tZ0pfuuprjwqH9TBb7TMmB9OZrQHSy-NGQEp

Si tiene preguntas, contacte a Joe Perales al 213.252.5600 o jperales@lanterman.org.

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PCP & IPP: From Process to Action

Lanterman Regional Center, in collaboration with the State Council on Developmental Disabilities, invites you to participate in the Individual Program Planning (IPP) and the Person-Centered Planning (PCP) training on Thursday, March 4, 2021 from 3:30-5:30 p.m. via Zoom. Learn about:

  • What is a Person-Centered Plan?
  • How can person-centered planning help develop an IPP?
  • Who participates in the IPP/PCP planning process?
  • Learn how to develop strategies and goals for an effective plan.

Space is limited, registration required online: https://us02web.zoom.us/meeting/register/tZUodOCqrj4oE9Cinnifk5HtSNpENUdjSDdu

For questions, contact Joe Perales at 213.252.5600 or jperales@lanterman.org.

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Sign, Say and Play: A Baby Signs Program

Lanterman's Koch-Young Resource Center presents Sign, Say and Play: A Baby Signs Program. Gives babies a way to “talk” with their parent - before they can talk. For parents and children birth to 5 years old to attend together, families will learn useful signs for mealtime, bedtime, bathtime and expressing feelings. In addition, parents will learn simple ways to support their baby’s intellectual and social-emotional development. The first session in a four-session series starts on March 23, 2021.

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KYRC Spring Storytime

Join the Koch-Young Resource Center and guest Librarian, Ms. Jennifer, for a spring-theme virtual storytime via Zoom on Friday, March 5, 2021 from 3 to 3:45 p.m.

Limited space, registration by February 25 is required to receive storytime supplies.

Registration link: https://us02web.zoom.us/meeting/register/tZcpc-ipqDIrGNL2rnC6qM-w-hqV0ieejygX

If you have any questions, contact Paola Coronado at pcoronado@lanterman.org or 213.252.8348.

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원격 학습 지원 및 PPE 착용 (Supporting Remote Learning and Wearing PPE in Korean)

원격 수업을 받는 동안, IEP 목표 달성을 위한 교사나 행동 보조 교사들의 증거 기반 교육과 동기 부여, 최신 기술을 통한 소통과 연결 등을 부모님들이 어떻게 도울 수 있을지에 대해 Zoom을 통해 화상 교육을 실시합니다. 관심 있으시 부모님들의 많은 참여 바랍니다.

한국어: 3월 31일, 1 p.m.

사전 등록은 필수입니다.
https://us02web.zoom.us/meeting/register/tZAudeCpqTguH9zGpTSjy4X7XUy8_mg2TdRk

문의 사항이 있으시면 다음으로 연락 바랍니다.
Evie Jung: ejung@lanterman.org, 213.252.8350
KYRC: kyrc@lanterman.org, 213.252.5600

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Sibshops: Workshops for Siblings of Children with Special Needs

Sibshops meets monthly and is for brothers and sisters, ages 8 to 14, with siblings with special needs. Join in for fun and educational Sibshops sessions the fourth Wednesday of each month from 4 to 5:30 p.m.

Registration in advance is required: https://us02web.zoom.us/meeting/register/tZYrfuytqTkjGtUb2orr1-riDH1LpOAhE6Xw

For questions, contact the Koch-Young Resource Center at 213.252.5600 or kyrc@lanterman.org.

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지역 센터 이해 (Understanding the Regional Center in Korean)

이 오리엔테이션 세션에서는 지역 센터 시스템에 대한 기본적인 필수 정보와 지식, 이용 가능한 서비스, 정보 및 자원 획득 방법을 제공합니다.

다루는 특정 주제는 다음과 같습니다:

  • 지역 센터는 무엇입니까?
  • IFSP / IPP 란 무엇입니까?
  • 부모의 역할은 무엇이며 서비스 코디네이터의 역할은 무엇입니까?
  • Koch-Young 리소스 센터 및 커뮤니티의 기타 리소스는 무엇입니까?
  • 그리고 더

등록이 필요합니다. 오리엔테이션 프레젠테이션은 ZOOM을 통해 진행됩니다. 등록시 링크가 전송됩니다.

이 회의에 미리 등록하십시오 :
https://us02web.zoom.us/meeting/register/tZUvc-2qpjssHdbpdSAXy9stjfjuYQfaBZTQ

자세한 내용은 Koch-Young 리소스 센터 (kyrc@lanterman.org 또는 213.252.5600)에 문의하십시오.

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Como Entender el Centro Regional

Esta sesión de orientación ofrece información necesaria básica y el conocimiento acerca del sistema de centros regionales, qué servicios están disponibles, y dónde puede obtener información y recursos.

Cubre la siguiente:

  • ¿Qué es el centro regional?
  • ¿Qué es un IFSP/IPP?
  • ¿Qué es el papel de los padres y cuál es el rol de su coordinador de servicios?
  • ¿Qué es el Centro de Recursos Koch-Young y otros recursos en la comunidad?
  • Y más

Se requiere registro. La presentación de orientación se realizará a través de ZOOM. El enlace se enviará al registrarse.

Regístrese antes para esta reunión:
https://us02web.zoom.us/meeting/register/tZUvc-2qpjssHdbpdSAXy9stjfjuYQfaBZTQ

Para mas información, pongase en contacto con el Centro de Recursos Koch-Young al kyrc@lanterman.org o 213.252.5600.

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Understanding the Regional Center

This orientation session provides basic necessary information and knowledge about the regional center system, what services are available and how to obtain information and resources.

Specific topics covered include:

  • What is the regional center?
  • What is an IFSP/IPP?
  • What is the role of the parent and what is the role of a service coordinator?
  • What is the Koch-Young Resource Center and other resources in the community?
  • And more

Registration is required. Orientation presentation will be held via ZOOM. Link will be sent upon registration.

Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZUvc-2qpjssHdbpdSAXy9stjfjuYQfaBZTQ

For more information, contact the Koch-Young Resource Center at kyrc@lanterman.org or 213.252.5600.

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Public Health Update Clarifying Family Member Caregivers Vaccine Eligibility

Actualización de Salud Pública que Aclara la Elegibilidad de las Vacunas para los Cuidadores Familiares

We're sharing the CDPH and LACDPH clarification on the eligibility of family member caregivers of regional center clients and required documentation. / Compartimos la aclaración de CDPH y LACDPH sobre la elegibilidad de los cuidadores familiares de los clientes del centro regional y la documentación requerida.

On the evening of February 4, the California Department of Public Health (CDPH) posted an update on their website clarifying that certain family member caregivers of regional center clients are eligible as healthcare providers for Phase 1A, consistent with the January 13, 2021 letter from the Department of Developmental Services (DDS) (https://lanterman.org/uploads/miscellaneous/COVID-19_Vaccine_Phase_1A_Letter_for_Family_Members.pdf).

This post can be found here, and the relevant paragraph is a short way down the page and also copied below: https://www.cdph.ca.gov/Programs/CID/DCDC/Pages/COVID-19/VaccineAllocationGuidelines.aspx

“Are family member caregivers of regional center [clients] eligible as healthcare providers for Phase 1A?”

“Yes, family member caregivers with direct risk of COVID-19 exposure who care for regional center [clients] at high risk of COVID-19 complications and related fatalities including the following conditions:

  • cerebral palsy,
  • down syndrome,
  • epilepsy, and
  • individuals who have specialized health care needs, including dependence upon ventilators, oxygen, and other technology

are eligible. This does not include other family members within the same household who do not provide direct care to the regional center [client]. Eligible family members must obtain documentation from their regional centers, verifying the qualifying condition of the family member cared for and caregiver status.”

Consistent with this, Los Angeles County Department of Public Health (LACDPH) is now directing its staff operating the vaccination clinics that family member caregivers are considered healthcare workers if they can present a letter from their Regional Center with the caregiver’s name(s) and the qualifying condition of the individual served by the Regional Center.

LACDPH has updated their guidance for what to bring to your scheduled vaccine appointment:

  • A letter from a regional center noting healthcare worker status must include the caregiver’s name and an attestation that the person cared for has a qualifying intellectual or developmental disability as per the DDS letter
  • AND a photo ID.
  • LACDPH will NOT accept medical documentation.

Please note:

  • The Regional Center is following the guidelines provided by CDPH and LACDPH and has no jurisdiction over who will receive vaccines.
  • CDPH and LACDPH do not list Intellectual Disability and Autism as qualifying conditions. Parents of individuals with these diagnoses may be eligible for a vaccine if the client also has a specialized health care need or a secondary diagnosis from the list above.
  • Please contact your service coordinator for a letter from the Regional Center. The letter is specific to the caregiver(s), most often the parent(s). Please do not bring additional family members as they will be turned away.

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En la noche del 4 de febrero, el Departamento de Salud Pública de California (CDPH) publicó una actualización en su sitio web en la que se aclaraba que ciertos cuidadores familiares de clientes del centro regional son elegibles como proveedores de servicios de salud para la Fase 1A, de acuerdo con la carta del 13 de enero de 2021 del Departamento de Servicios del Desarrollo (DDS) (https://lanterman.org/uploads/miscellaneous/COVID-19_Vaccine_Phase_1A_Letter_for_Family_Members.pdf).

Esta publicación se puede encontrar aquí, y el párrafo relevante está un poco más abajo en la página y también se copia a continuación: https://www.cdph.ca.gov/Programs/CID/DCDC/Pages/COVID-19/VaccineAllocationGuidelines.aspx

“¿Son elegibles los familiares que cuidan a los [clientes] del centro regional como proveedores de servicios de salud para la Fase 1A?”

“Sí, cuidadores familiares con riesgo directo de exposición al COVID-19 que atienden a [clientes] del centro regional con alto riesgo de complicaciones del COVID-19 y muertes relacionadas, incluidas las siguientes condiciones:

  • parálisis cerebral,
  • síndrome de Down,
  • epilepsia, y
  • personas que tienen necesidades de cuidado de salud especializadas, incluida la dependencia de ventiladores, oxígeno y otras tecnologías

son elegibles. Esto no incluye a otros miembros de la familia dentro del mismo hogar que no brindan atención directa al [cliente] del centro regional. Los miembros de la familia elegibles deben obtener documentación de sus centros regionales, verificando la condición de elegibilidad del miembro de la familia cuidado y el estado del cuidador."

De acuerdo con esto, el Departamento de Salud Pública del Condado de Los Ángeles (LACDPH) ahora está indicando a su personal que opera las clínicas de vacunación que los cuidadores familiares se consideren trabajadores de la salud si pueden presentar una carta de su Centro Regional con el nombre(s) del cuidador(es) y la condición de calificación de la persona atendida por el Centro Regional.

LACDPH ha actualizado su guía sobre qué llevar a su cita programada para vacunas:

  • Una carta de un centro regional que indique el estado del trabajador de la salud debe incluir el nombre del cuidador y una certificación de que la persona atendida tiene una discapacidad intelectual o del desarrollo calificada según la carta del DDS
  • Y una identificación con foto.
  • LACDPH NO aceptará documentación médica.

Tenga en cuenta:

  • El Centro Regional sigue las pautas proporcionadas por CDPH y LACDPH y no tiene jurisdicción sobre quién recibirá las vacunas.
  • CDPH y LACDPH no enumeran la discapacidad intelectual y el autismo como condiciones que califiquen. Los padres de personas con estos diagnósticos pueden ser elegibles para una vacuna si el cliente también tiene una necesidad de atención médica especializada o un diagnóstico secundario de la lista anterior.
  • Comuníquese con su coordinador de servicios para recibir una carta del Centro Regional. La carta es específica para el (los) cuidador (es), con mayor frecuencia los padres. Por favor, no traiga miembros de la familia adicionales, ya que serán rechazados.

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Conservatorship

Lanterman Regional Center, in collaboration with Waterson Huth & Associates, invites you to participate in a Conservatorship presentation on Thursday, March 11, 2021 from 3:30 to 5:30 p.m. via Zoom. Learn about:

  • What is Conservatorship?
  • Types of Conservatorships
  • Alternatives to Conservatorship
  • What rights does my child have?
  • What are my rights as a parent after my child turns 18?
  • What are my duties as a conservator?
  • What if my child is competent to make decisions with support?

Space is limited, registration required.

Register online: https://us02web.zoom.us/meeting/register/tZwpf-iprj0iEtdOiJeC2DY7K3cFsTJxfvWS

Contact Joe Perales at 212.252.4986 or jperales@lanterman.org.

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Infant Massage

Lanterman's Koch-Young Resource Center presents Infant Massage, a three-session parent and me series designed for children ages birth to crawling.

Parents will learn the benefits of infant massage, including:

  • Helps to decrease stress for you and your baby.
  • Helps relieve discomfort from constipation, gas and colic.
  • Helps normalize muscle tone and improve blood circulation.
  • Stimulates brain development and improves sensory awareness.
  • Promotes bonding and attachment.

Space is limited, registration in advance required. The series runs for three weeks on Tuesdays, February 23 to March 09, 2021 from 11 a.m. to 12 p.m.

Register online: https://us02web.zoom.us/meeting/register/tZYqfuChqT8iHdLB4k5mjgqan6uh-cJ3FjeB

For more information, contact Paola Coronado at 213.252.8348 or pcoronado@lanterman.org.

Program made possible by a contribution from the Fred and June MacMurray Foundation.

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Autism Spectrum Friendships, Relationships and Resilience

Eight session virtual series Presented by Foothill Autism Alliance starting Saturday, February 27.

Friendships are the foundation of relationships. Close personal friends will stick up for each other in front of others, answer questions honestly (in a kind way), help each other when there is a need, and enjoy spending time together. Friends are an outlet that can prevent feeling lonely and depressed.This workshop series will focus on skills and strategies to forming friendships and developing relationships. Following each session for our adults on the spectrum is a session for their parents and caregivers, who will learn how to practice and support the process of building friendships and romantic relationships.

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Message from ARCA: People with Developmental Disabilities Need Vaccine Priority - Act Now!

We are resharing this message from the Association of Regional Center Agencies: "People with Developmental Disabilities Need Vaccine Priority - Act Now!"

California's continuing to get vaccines distributed, based on a special set of priority "phases." It started with "Phase 1A," which included health care workers and first responders.

But people with developmental disabilities weren't part of that group. Even though they are often at extra risk because of their disability (or disabilities), the State still hasn't moved our community up the list.

YOU can help change this! We need to let Governor Newsom know that people with disabilities should be put in the very next group, "Phase 1B." When you do:

  • Introduce yourself! Be sure to say if you have a disability, are a family member, or work in the community. 
  • Explain that people with disabilities are at extra risk due to COVID-19, and need to be prioritized in Phase 1B.
  • Thank them for considering our community.

A sample letter is also provided, which you can copy and paste in your email. But personalizing your message is always better!

To contact Governor Newsom, use the official online contact form. Choose "COVID-19" as your subject in the drop-down box on that page.


SAMPLE LETTER

  Honorable Governor Newsom, 

     Many people with developmental disabilities are at extra risk from COVID because of their disability. For instance, COVID can be 10 times more deadly for people with Down Syndrome. Because of this risk, it is critical that vaccines be prioritized for this community.

     Currently, the state has prioritized people who live in institutional settings to get the vaccine. But most people with developmental disabilities live in the community, not institutional settings. This is both personal choice and a state goal. They get special services that make this possible. The biggest difference between these two groups is where they live. Their health risk factors are the same, and it is important that people with similar needs get similar treatment.

     To make it clear that people with developmental disabilities should be prioritized for vaccines, I support a new definition being added to the vaccine priority list: “people with disabilities who receive services that allow them to stay out of institutional settings.” This matches with a federal definition of “Home and Community-Based Services.” It will make it easy to ensure that this at-risk population can get the protection they need.

   Thank you for considering our community in Phase 1B of the COVID vaccine.

Sincerely,
_______


ARCA and the regional centers are working with community partners to help get our community prioritized for vaccinations. Yesterday, we co-sponsored a town hall webinar with Disability Voices United, the State Council on Developmental Disabilities, and Disability Rights California.

Did you miss it? The town hall is archived on Facebook for you to watch!

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COVID-19 Vaccine Updates About Accepted Documentation, plus Other Info and Tips

We're sharing reports from family members regarding accepted documentation, plus getting an appointment, including tips.

Reports from Family Members Regarding Regional Center Documentation

Last week, we, and several other regional centers, developed a letter in response to family requests for a letter from their regional center. You may recall that the letter on regional center letterhead allowed you to insert the name of the individual family member/caregiver.

Please do not use the letter on regional center letterhead as documentation for your vaccination appointment. Late last Friday, we were told that the Department of Public Health would not accept this letter.

Please continue to use the following for your vaccination appointments. Some locations look carefully at this documentation, and some do not:

  • This letter from the Department of Developmental Services regarding expansion of vaccination phase 1A for healthcare worker to include family members caring for individuals with developmental disabilities.
  • Proof of your appointment.
  • Your ID showing your name and address.
  • A copy of your regional center Individual Program Plan (IPP).

We are in communication with the Department of Public Health regarding some cases of families that were not allowed to proceed with vaccination due to misunderstanding by some LA County staff regarding eligibility of family member caregivers. The Department of Developmental Services and the LA County Department of Public Health are now aware of this issue and are trying to resolve it as soon as possible.

Regional centers do not have control over the distribution of vaccines, but we continue to stay in close communication with our local and state public health departments. We want to provide you with the most timely information we receive from the County and the State.

As this time, our clients with developmental disabilities themselves are not in an eligible tier to receive the vaccine, unless they are age 65 or older, or work in a healthcare worker category. We continue to work with our statewide agency and other advocates to add them to currently eligible categories.

How Can We Get an Appointment?? All the Slots are Taken!!

Unfortunately, everyone who is in one of the currently expanded eligible categories, (including Lanterman family members, service providers and staff), is experiencing challenges in finding available appointments right now due to the recent expansions of eligible persons. We are very pleased to hear from some of you that you have successfully obtained your first dose.

Here are some tips that have been offered

  • Contact your health care plan to see if they are offering vaccinations. Some are. (We're hearing from Kaiser members that they have been able to get appointments there pretty quickly.)
  • Get regular updates by entering your e-mail address at the VaccinateLACounty.com website to sign up for vaccine e-mail alerts.
  • Check back on the website or call center several times a day, because new slots are made available if there are cancellations or if more vaccine is scheduled to arrive.

From the Los Angeles County Department of Public Health: "Vaccine supply is still extremely limited. While we are continuing to work with our state partners to improve the functionality of the website, we ask for the public’s patience as we build capacity and supply. We may add additional appointments later this week and additional slots may open if people cancel their appointments. We're increasing capacity in our call center, starting at 10 a.m. Wednesday, to assist those without computer access. Residents can call 833.540.0473 between 8 a.m. and 8:30 p.m., 7 days a week."

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COVID-19 Vaccine Distribution Info

The Los Angeles County Department of Public Health (LACDPH) has websites that tell you who is eligible at this time to receive the vaccine and will let you know when you are eligible to receive the vaccine. Click here and here to see these websites.
 
You can also sign up for a newsletter to receive updates about the vaccine. Sign up for this newsletter
 
If you want to register to be contacted when it is your turn to receive the vaccine, you can register at myturn.ca.gov.

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Things to Know About the COVID-19 Vaccine

This guide is easy to ready and explains the following:

  • What is COVID?
  • What is a vaccine?
  • How does the vaccine work?
  • Is the vaccine safe?
  • How did they do research to test if the vaccine works?
  • Is the vaccine only for people who have COVID now or had COVID before?
  • Who should not get the vaccine?
  • Does the vaccine mix up with my medications?
  • Can I be allergic to the vaccine?
  • How do I decide if I want to get the vaccine?
     

File

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PPE Giveaway for Lanterman Families

Lanterman’s PPE distribution is back.

This drive-through event is only for Lanterman clients living at home.

Distribution pick-up locations:

  • Los Angeles area: Saturday, February 20, 2021, 10 a.m. to 12 p.m.
  • Glendale area: Saturday, February 27, 2021, 10 a.m. to 12 p.m.

REGISTRATION is REQUIRED: https://forms.gle/Vx4gGR4h3QgXFRxo7

  • You must complete this registration form by Monday, February 15, 2021.
  • You can register one client per family only.

Contact the Koch-Young Resource Center at 213.252.5600 or kyrc@lanterman.org if you have questions or need assistance.

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COVID-19 Vaccine Frequently Asked Questions

The Department of Developmental Services released a COVID-19 Vaccine Frequently Asked Questions document that provides general information about the COVID-19 vaccine, including info about the two vaccines themselves, their safety, and how vaccination rollout will take place. This will be updated as additional information becomes available.

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List of “Healthcare Workers” Eligible for Vaccination Expanded to Include Family Members & Providers

The Department of Developmental Services has issued the following letters indicating that family members of people with developmental disabilities, regional center direct service providers, and regional center employees are considered "health care workers" pursuant to the State of California's Vaccination Plan, and are thus prioritized for COVID-19 vaccination within Phase 1A.

They will be translated and posted on the Department’s website at: https://www.dds.ca.gov/corona-virus-information-and-resources/vaccine-testing/

Individuals in these healthcare worker categories in LA County can sign up for appointments by clicking here. Locations for vaccinations are also increasing.

We are aware that as of yesterday individuals over age 65 have also been made eligible. The LA County website should be edited to indicate that shortly (keep checking back and refreshing to watch for that).

Advocates are still working hard to expand the vaccination priority to individuals with disabilities/underlying health conditions as soon as possible.

Also, we reported on January 8 via e-mail bulletin (click here to read):
The Second Tier includes individuals who are IHSS providers. If you are a provider you can click on the link above and follow the steps to get an appointment for the COVID vaccine. Tier 3 includes speech therapists, physical therapists and occupational therapists.

Please note that the Regional Center does not have any direct influence over your access and ability to secure an appointment for the vaccine. You are encouraged to be persistent, in your efforts to get an appointment, and keep checking the website above for additional tiers to be added. LA County Public Health Department will continue to open up additional appointments in the days and weeks to come.

Files

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COVID-19 Vaccine Update - Current IHSS Providers in LA County May Sign Up to be Vaccinated Now

Anyone who is CURRENTLY registered as an IHSS provider in LA County may now sign up to be vaccinated. Signups are online and are first come, first served.

Lanterman Regional Center has been informed that the COVID-19 Vaccine Prioritization and Allocation schedule established by the Public Health Department is currently in the Phase 1A Tier 1 and part of Tier 2.

The Second Tier includes individuals who are CURRENTLY registered as In-Home Supportive Services (IHSS) providers, which includes parents and family members who are currently registered providers.

If you are a provider click on the link below and follow the steps to get an appointment for the COVID-19 vaccine:
http://publichealth.lacounty.gov/acd/ncorona2019/vaccine/HCWSignup/

Please note that Lanterman Regional Center does not have any direct influence over your access and ability to secure an appointment for the vaccine. You are encouraged to be persistent in your efforts to get an appointment, and keep checking the website above for additional tiers to be added. Los Angeles County Department of Public Health will continue to open up additional appointments in the days and weeks to come.

Click here to learn more about the Los Angeles County Vaccine Distribution Phases

Following is information from the Los Angeles County Department of Public Health on the current vaccination scheduling for health care workers. Healthcare workers at high and medium risk who work in these settings can make an appointment to be vaccinated now:

  • Acute Psychiatric Hospitals  
  • Federally Qualified Health Clinics  
  • Home healthcare organizations and home health agencies (in-home supportive services personnel)  
  • Intermediate Care Facilities  
  • Infusion/Oncology Centers  
  • Residential and Inpatient Substance Use Disorder (SUD) Treatment  
  • Residential and Inpatient Mental Health Facilities  
  • Urgent Care Clinics  
  • Primary care clinics, rural health centers, and correctional facility clinics  
  • Outpatient substance use disorder (SUD) treatment, mental health facilities, and crisis stabilization units  
  • Medical shelters  
  • Sheltered and unsheltered settings who are providing direct clinical care for people experiencing homelessness

Click here to learn more about vaccinations for health care workers

Note:

  • High-risk employees are front-line clinical staff who provide direct patient care, and support staff with risk of exposure to bodily fluids or aerosols (includes physicians, NPs, LVNs, MAs and employees in environmental services).  
  • Moderate-risk employees are staff who have indirect or limited in-person patient contact.  
  • Low risk employees WITHOUT routine patient contact (such as administrative support staff) should not be vaccinated at this point. They will be offered vaccination in later phases (see Vaccine Prioritization and Allocation)

As we learn new information we will share it on our social media and in our e-bulletin. If you're not signed up to receive our e-mail newsletter directly, you can do so here: https://lanterman.org/subscribe and also like and follow us on Facebook for the latest updates here: https://www.facebook.com/lantermanregionalcenter.

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Thank You for Your Support of HAFS

We just wanted to extend our heartfelt thanks to everyone who contributed to our 2020 Holidays Are For Sharing (HAFS) campaign. Your generous contributions replenished our Help Fund and will allow us to continue to support those members of our community most in need in 2021. 

Since April 2020, we have provided food boxes, food cards, and PPE to 1,600 clients and their families, totaling more than $50,000. And we know that food insecurity will continue to be an issue affecting our community for some time, so while our holiday fundraising campaign has ended, it is by no means too late to contribute.

Thank you again for your support, it's truly making a difference!

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