The impact of a rare disease extends beyond the patient and is interwoven into their entire family dynamic. Siblings of rare disease patients often face personal challenges inside and outside of the home. Guidance and nurturing can empower unaffected siblings to be supportive members of the family while maintaining their own unique identities.
Join NORD on Thursday, March 25, 2021, 11 a.m. to 12 p.m. (2-3 p.m. ET) to hear from child life specialist Kate McGowen and psychologist Dr. David Rintell, who will discuss commonly observed barriers and best practices for fostering healthy sibling relationships. Rare sibling Hannah Raskin-Gross will share her experience growing up with a brother who has a rare disease and how it has shaped her commitment to advocacy.
This webinar, moderated by special guest and child life specialist Eden Van Alstine, is intended for patients, advocates, caregivers, students and the general public.
California law and regulation requires that regional centers display on their Web sites information about the dollar value of services they purchase for clients. These data (called "purchase of service" or "POS" data) must be reported separately by clients' ethnic/racial group, langauge and diagnosis.
¿Cuáles son sus necesidades de servicio actuales? ¡Responda la encuesta y avísenos!
Lanterman is seeking your feedback and assistance in completing a short survey so we can better understand the current service needs. This survey is for our community to complete, including clients, family members, service providers or community partners. Thank you in advance for your time!
////////////////////////////////////
Lanterman busca sus comentarios y ayuda para completar una breve encuesta para que podamos comprender mejor las necesidades actuales del servicio. Esta encuesta es para que la complete nuestra comunidad, incluidos los clientes, los miembros de la familia, los proveedores de servicios o los socios comunitarios. ¡Gracias de antemano por su tiempo!
Regional centers must post information regarding how providers are doing with ensuring individuals served are part of their communities (Welfare and Institutions Code section 4519.2(b)). This information is to be updated at least every six months until DDS has determined that statewide compliance has been met.
El Internet está inundado de información y recursos sobre el Coronavirus (COVID-19) desde el nivel federal hasta el estatal y local. Comenzamos esta página para compartir algunos de los recursos e información que encontramos más útiles y accesibles, además de compartir información específica para Lanterman sobre cualquier efecto que esto tenga en nuestras operaciones, nuestros proveedores de servicios y la comunidad en general.
The Internet is awash in info and resources about the Coronavirus (COVID-19) from the federal to the state and local levels. We're starting this page to share some of the resources and info we found most helpful and accessible, plus to share information specific to Lanterman about any effects this is having on our operations, our service providers and community as a whole.
