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Partners in Lifelong Support

Lanterman is dedicated to helping individuals and families become informed and effective members of the Lanterman community. Throughout the years, your and your family’s journey with Lanterman will be filled with choices, challenges and successes, and we hope the information included in this site will help you navigate the path that lies ahead.

This section will focus on six key areas:

There are also “tips” from experienced families and service coordinators, and answers to frequently asked questions (FAQs).

The Lanterman Developmental Disabilities Services Act

The Lanterman Act outlines the rights of individuals with developmental disabilities and their families, how the regional centers and service providers can help these individuals, what services and supports they can obtain, how to use the individualized program plan to get needed services, what to do when someone violates the Lanterman Act, and how to improve the system.

Working Together in Partnership

The Lanterman community includes individuals and their families, service providers, staff and the broader community in our geographic area, including other local and state agencies. In order for this partnership to be successful, all community members must actively participate and work collaboratively, while respecting and recognizing individual contributions, roles, strengths and experiences. As the primary source of care and support for the person with a disability, the family occupies a leadership role in this partnership.

Person Centered Planning

At its core, developing and implementing a person-centered plan is about providing services and supports that are individualized and flexible over time, are built on strengths and needs, and respect the choices and preferences of the individual and the family.

Person-centered planning is an approach to determining, planning for and working toward the preferred future of an individual. It provides a framework for planning and making decisions, and takes into account a variety of factors that affect a person’s life. It is not a collection of methods or procedures.

Resolving Disagreements About Services and Supports

If you disagree with a decision Lanterman makes about initiating, changing or terminating a service or support, you should discuss your concerns with your service coordinator to be sure you understand the reason for the decision. If after this, you still disagree with the decision, you have the right to appeal the decision.

Legal Rights and Responsibilities of People with Developmental Disabilities

People with developmental disabilities have the same basic rights and responsibilities as all other legal residents of the United States and the state of California. California law also gives people with developmental disabilities some additional special rights.

Receiving Quality and Effective Services and Supports

Lanterman is committed to providing services and purchasing services from our network of community service providers that are of high quality, achieve the desired results, and are cost-effective.

Resources

The Department of Developmental Services has released a new Information Packet with information about the Lanterman Services Act. It’s for individuals, parents and caregivers of children or adults over 3 years old who may have or are at risk of having developmental delays or disabilities. This packet is also for people who want to learn more about the regional center system, resources, rights and how to qualify for services.

Download the Guide

View more on the DDS Website.

The Lanterman Family Service Guide provides an overview of the services available to clients. It is intended to help you make informed decisions about services and supports your family member may need.

Download the Guide

Video

What are the California Regional Centers?

This video was created by Lanterman and Friends, a collaborative effort by the California Department of Developmental Services (DDS) and the Regional Center system to make complex information simple, engaging, and accessible.
 

FAQ

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  1. Assessment and diagnosis
  2. Service coordination linking people with services
  3. Lifelong individualized planning
  4. Assistance in finding and using community resources
  5. Purchase of services identified in the individual plan
  6. Advocacy for the protection of legal, civil and service rights
  7. Early intervention services for at-risk infants and their families
  8. Information and referral
  9. Family support
  10. Training and educational opportunities
  11. Community outreach, awareness and education about developmental disabilities
  12. Quality assurance and enhancement activities
  13. Resource development
  14. Client benefit coordination
  15. Koch-Young Resource Center

An individual’s status with Lanterman is active as long as the individual is receiving services from Lanterman, including service coordination and maintaining a current Individual Program Plan.

An individual’s status becomes inactive either when the individual or family chooses to no longer receive services from the Regional Center and asks for the status to be changed, or if we lose touch with the individual.

It is very important that individuals and families keep Lanterman informed of their current address. If we are unable to contact an individual by mail and phone, we visit the last known address. If these attempts fail, we designate the individual’s status as inactive. The individual or family may ask for the case to be reactivated at any time.

The Lanterman Act states that a person “who is determined by any regional center to have a developmental disability shall remain eligible for services from regional centers, unless a regional center, following a comprehensive reassessment, concludes that the original determination that the individual has a developmental disability is clearly erroneous.” [Section 4643.5(b)]

There are many public agencies that are legally required to provide services to individuals with developmental disabilities. We refer to these agencies as generic agencies and to the services and supports they provide as generic services. Each of these agencies has its own guidelines for eligibility and services. Generic agencies include, but are not limited to, Medi-Cal, public schools, county mental health agencies and the Social Security program.

Excerpt from the Department of Developmental Services’ publication, “How to Develop Natural Supports”

As defined in the Lanterman Developmental Disabilities Services Act, Section 4512 of the Welfare and Institution Code, Part (e): “Natural Supports” means personal associations and relationships typically developed in the community that enhance the quality and security of life for people, including, but not limited to, family relationships; friendships reflecting the diversity of the neighborhood and the community…

What does “Natural Supports” really mean? Think about all the people in your life – friends, family, co-workers – who are important to you and on whom you depend. Relationships with these people are your natural supports.

Read the entire publication:

English

Spanish

According to the Lanterman Act: “Circle of support means a committed group of community members, who may include family members, meeting regularly with an individual with developmental disabilities in order to share experiences, promote autonomy and community involvement, and assist the individual in establishing and maintaining natural supports. A circle of support generally includes a plurality of members who neither provide nor receive services or supports for persons with developmental disabilities and who do not receive payment for participation in the circle of support.” [Section 4512 (f)]

In other words, a circle of support is a group of people who play an important role in the life of an individual by providing support in different ways during their day-to-day interactions with that person. Anyone that plays a supportive role in the person’s life is part of his or her circle of support. This could be a family member, a neighbor, or a school or work friend.

Stay informed by attending meetings and asking questions. Visit and observe services or programs working with your child. If you are pleased with the progress and results, let the provider and your service coordinator know. If you observe anything unusual, such as missed appointments, coming late, or leaving early; are concerned about the quality of the service; or do not think that the service is achieving the desired outcome; you should share your concerns with the provider, but definitely share them with your service coordinator as soon as possible.

Families have told us over the years that one of the most important things they learn at the Regional Center is that they are not alone – that other parents of children with special needs share their experiences and feelings. Here are some things that parents have told us that have been particularly helpful to them:

  1. Seek out peer support from other families who have “been there” by joining a support group or requesting a Peer Support Partner.
  2. Identify and make use of your own natural support system – family, friends, religious organizations, community.
  3. Keep your expectations high and set challenging, yet realistic, goals.

If you or your family moves from Lanterman’s service area to another location in California, services and supports will be provided by the regional center that serves your new geographic area. Lanterman will transfer records to the new regional center. According to the Lanterman Act: “Whenever [an individual] transfers from one regional center catchment area to another, the level and types of services and supports specified in the [individual’s IFSP/IPP] shall be authorized and secured, if available, pending the development of a new [IPP/IFSP] for the [individual]. If these services and supports do not exist, the regional center shall convene a meeting to develop a new [IPP/IFSP] within 30 days. Prior to approval of the new [IPP/IFSP], the regional center shall provide alternative services and supports that best meet the individual program plan objectives in the least restrictive setting.” [Section 4643.5 (c)]

If your family moves out of California, your service coordinator and the Koch-Young Resource Center can help you contact the appropriate developmental services agency and locate related resources in the new state. With your written consent, the Regional Center can also transfer your records to that state’s agency.

It is important for service coordinators to visit individuals and their families in their homes rather than another more public setting. Many of the issues discussed at a meeting are personal and private and it is difficult to maintain a desired level of privacy and confidentiality when these matters are discussed in a setting such as a coffee shop or restaurant. Additionally, it is essential for service coordinators to be familiar with an individual’s home situation so they can make the appropriate recommendations, especially in regards to in-home supports. The more they understand and know about you and your family, the better they are able to support you.

  1. Basic information about you or your family member, such as special needs or medical conditions, so that others can provide consistent care.
  2. A list with contact information of all the people, agencies, programs and organizations that are providing services to you or your family member.
  3. A copy of the current Individual Program Plan and, if applicable, Individualized Education Program.
  4. Copies of reports from independent assessments.
  5. Copies of all written communication (including handwritten) to and from all professionals working with you or your family member.
  6. A list of medications being taken at home, school or work as authorized by the physician. Include the medication name, dosage, time of day taken, and the prescription number and pharmacy. Also note changes in dosage and reactions to the change that you have observed.
  7. Your notes (dated) about meetings or phone conversations with regional center staff, physicians and other professionals working with you or your family member. Also, be sure to include the name of the person with whom you spoke or met.

It is helpful to divide records into subcategories, such as health, education and IPP, and organize them by date with the most recent on top.

It also helps to maintain a notebook containing copies of your most recent records that you can take with you to meetings and appointments. This notebook should include, at a minimum, two years of reports, evaluations and program plans.

If you do not know the name of your service coordinator, call the Regional Center at 213.383.1300 and ask the operator to transfer you to the secretary for the unit that is supporting you. If you don’t know the unit, let the operator know the client’s age and what city he or she lives in, and the operator will transfer you to the appropriate unit. Lanterman takes our responsibility to protect the privacy of our clients and their families very seriously, and you may be asked questions to confirm your identity.

Sixty years of Lanterman!

 

We invite you to journey alongside us through our “60 Highlights for 60 Years” social media series.